Being a media guy

My thoughts on: Internet phenomena ALS #IceBucketChallenge

Grown up men, web celebrities and billionaires pour a bucket full of ice water over their head. Socking wet they challenge three new people to do them alike within 24 hours. This is all happening under the hashtag #IceBucketChallenge or #ALSIceBucketChallenge, to raise awareness for ALS a nerv disease, that is not yet researched well enough.

Check Bill Gates Facebook profile or Jamie Oliver’s approach on YouTube.

Unfortunately every B and C celebrity is participating in this challenge to benefit from the momentum and get some personal publicity. I am grateful, that ALS gets such an attention online, but I hate people who jump on the bandwagon.

My youth handball coach, also a good friend’s Dad committed assisted suicide after suffering from ALS. He was mentally fit, but lost control over his body. It started with simple things: losing the ability to whistle, then to speak, to eat by himself and finally to breath without assistance. It was very hard to see how someone you admire for his fitness and his jokes loses the ability to just be himself and to express his personality as he always did.

So just remember this when watching all the #ALSIceBucketChallenges, it is not about the show it is time to invest more into research and development of new therapies and medicine. So please support this cause and donate some real money instead of clicks. Thanks.

Watch this last single challenge, especially after 1:59 minutes – this is why!


R.I.P. Rolf

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  1. Jens sagt:

    Positive: As of Wednesday, August 20, The ALS Association has received $31.5 million in donations compared to $1.9 million during the same time period last year (July 29 to August 20). These donations have come from existing donors and 637,527 new donors to The Association. – i like!

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